Today is surgery day! We are putting in the shunt that will allow for blood to flow to the lungs even if she has a severe Tet spell. They picked Ella up at 7:30ish for surgery. They had a hard time getting the arterial line in for internal blood pressure but that was the only complication if you can call it that.
We were out of surgery and in a room and set up to go by 1:00. Since they needed to keep her sedated throughout the day. She did try to wake up early so she got an extra does of medication to put her back to sleep. Lenee was watching her that day and wanted us to take care of ourselves so we would be ready for the harder parts later in the week. So we took the time to rest and recoup for the week. Only going back for the before and after shift change routine and check in with the nurses.
On Tuesday we started the wake up process. As she floated in and out so did we. She finally started to wake up in the evening but seemed to only have eyes for grandma and papa.
I spent the night with Becky so I could be there when they int abated her. They shut off the ventilator around 11:30 and then at 1:00 took the tubes out. From there she seemed to rest comfortably so I went and called her daddy and then to sleep.
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